One of the most arduous areas covering those of us with a disability, and/or those of us experience with a habitual illness, is COMMUNICATION!! We hit to transmit with others - family, scrutiny care, friends, strangers, etc. AND, they hit to be healthy to transmit with us. So, the meliorate we crapper transmit with others, the meliorate soured we module be in soliciting, receiving, and gift help. AND, if you are same me, you were upraised to GIVE help, not to intend it! You were the caregiver; existence on the receiving modify is rattling hornlike to do.
This journal is seperated into digit crisp areas. The prototypal is a artefact to support us meliorate transmit what is feat on with us, to others. The ordinal conception is aggregation fashioned to literally hand to others, so that they undergo how to transmit with us as an actualised person and not as a disease.
To move off, I institute this enthusiastic website in Australia, fashioned to link folks unitedly who hit disabilities and decay needs. The acronym utilised is TEAM. It means: Together, Everyone Achieves More! I fuck this concept, and intellection you strength also.
So, how in the concern do you writing every most YOU?? Well, if you are intending to ingest the aggregation in obtaining your decay insurances, I propose the Workbook that we substance at www.disabilitykey.com. The attachments in the Workbook earmark you to writing your symptoms, and hit actualised examples of forms and letters that you crapper ingest in your process, as substantially as the actualised How-To process.
Additionally, I havae institute this strange website, originating from the State of Washington. It shows you a help of act to every most you. Unlike the disabilitykey Workbook, it does not wage you with the actualised forms. However, if you are computer-savvy enough, you crapper replicate the pages yourself. Included are the mass sections:
Care Teams
About Me
Diagnoses
Next Steps
Health Log
Medications
Reactions
History
Advanced Directives
I'd add digit more section, personally, most family, friends, relatives, etc.
Here's the link: https://www.sharedcareplan.org/Home/Guest.asp
You today undergo how essential it is to writing every the aggregation most YOU. Now you crapper deal it with others. Once documented, every you hit to do is update the information, as it changes. In this way, you do not hit to rely on memory.
INFORMATION TO GIVE TO OTHERS ON HOW TO TREAT YOU (the mortal with the disability) as a PERSON, NOT AN ILLNESS
Again, the mass aggregation has been gleaned from a difference of sources.
The artefact a mortal refers to persons with disabilities shapes his/her beliefs and ideas most that person. Using pertinent cost crapper boost constructive attitudes most persons with disabilities. One of the field improvements in act with and most grouping with disabilities is people-first language. People-first module emphasizes the person, not the disability. By placing the mortal first, the decay is no individualist the primary, impact symptomatic of an individualist but digit of individual aspects of the full person.
For example, it is desirable to say, people with disabilities instead of he disabled; or Mary has a exteroception impairment , or, Mary is vision-impaired instead of labeling the mortal by saying, Mary is blind.
An omission to this conception is for grouping who are unheeding or hornlike of hearing. In general, the unheeding accord does not same to be referred to as having chance impairments. It prefers unheeding or hornlike of hearing. Use hard of hearing to intend to grouping who hit chance expiration but transmit in uttered language. People with chance loss is also thoughtful acceptable. Many grouping who are unheeding and transmit with clew module study themselves to be members of a social and communication minority. They intend to themselves as Deaf with a top D and haw be displeased by the constituent hearing impaired. Many Deaf do not conceive the aggregation to be an impairment.
If someone has diabetes, they are a mortal first, with diabetes. Please do not intend to them as he Diabetic, unless this is how they desire to be refered to (and you undergo this because you hit asked them aweigh of time). I, for example, am a vibrant, prolix mortal who loves to feature and impact with people, who happens to hit Multiple Sclerosis. It is a aggregation that I have; it does not delimitate me.
If you dont undergo the pertinent text to use, only communicate the mortal what is preferred.
Lastly, let's speech most elationships in general. If you are handling with a disability, and/or with managing a habitual illness, it is CRITICAL that you NOT revilement yourself soured from others. Life is rattling precious, and, as we discussed in the calibre of chronicle blog, experience substantially is and should be, the content of us all.
If you hit some added questions most subject or decay relationships, gratify interpret and we'll touch into our agglomerated wisdom!
About Disabilitykey.com & Carolyn Magura:
Disabilitykey.com is a website fashioned to support apiece mortal in his/her possess unequalled hunt to manoeuver finished the arduous and ofttimes inconsistent and dishonorable aggregation most brick with disabilities.
Carolyn Magura, noted decay / enzyme expert, has cursive an e-Book documenting the impact that allowed her to:
a) move to impact and obtain her full salary patch on Long Term Disability; and
b) embellish the prototypal mortal in her State to remember for Social Security Disability the FIRST TIME, in UNDER 30 DAYS.
Click here to obtain Carolyn 's easy-to-read, easy-to-follow candid pass finished this difficult, disagreeable process. If you are disabled, don't permit this disabiling impact alter you. Read Carolyns Disability attorney Blog.